Resources

Mayor's Office of Employee Assistance
Resources

The number of services for aging and impaired adults, their families and caregivers is growing. As a caregiver you need resource information to help you with critical issues that will affect you, your family and your loved one.

According to the Family Caregiver Alliance Clearinghouse, nearly one out of every four U.S. households (23% or 22.4 million families) is involved in caregiving to persons aged 50 or over. However, contrary to popular belief, only an estimated 10% to 20% of family caregivers use formal services through public or private agencies.

Although time spent caregiving varies by type of impairment, on average, caregivers provide personal care assistance and household maintenance chores for 12 hours per week, with 80 percent providing unpaid assistance 7 days a week. The duration of caregiving can last from less than a year to over 40 years. The majority of caregivers provide unpaid assistance for one to 4 years, with an additional 20 percent providing care for 5 years or longer.

Resources for caregivers is therefore critical and can include senior centers, independent living centers, Area Agencies on Aging, local chapters of national organizations and boundations such as the Alzheimer’s Association, Brain Injury Association, Multiple Sclerosis Society and other specialized assistance programs, depending on need. In addition, there are nursing home programs, community mental centers, social service or case management agencies, nursing schools and church groups that can be sources of assistance for communities with fewer resources.

THE FOLLOWING LISTINGS OFFER INFORMATION AND REFERRALS.

Family Caregiver Alliance 690 Market Street, Suite 600 San Francisco, CA 94104 (415) 434-3388 (800) 445-8106 (in CA) www.caregiver.org E-mail: info@caregiver.org

American Association of Retired Persons (AARP) 601 “E” Street NW Washington, DC 20049 (202) 434-2277 (publications on caregiving) www.aarp.org/caregiving

Children of Aging Parents Woodburn Office Campus 1609 Woodburn Rd., Ste. 302A Levittown, PA 19057 (215) 945-6900 (800) 227-7294

National Association of Area Agencies on Aging National Eldercare Locator 1112 16th Street NW, Ste. 100 Washington, DC 20036 (202) 296-8130 (800) 677-1116 (nationwide AAA listings) www.ageinfo.org/elderloc/ elderloc.html

National Federation of Interfaith Volunteer Caregivers 368 Broadway, Suite 103 Kingston, NY 12401 (914) 331-1358 (nationwide volunteer affiliates) (800) 350-7438 www.NFIV.org

Well Spouse Association 63 West Main Street, Suite H Freehold, NJ 07728 (800)838-0879 (732)577-8899 Fax: (732)577-8644 wellspouse.org

The American Institute of Stress 124 Park Ave. Yonkers, New York 10703 1(800) 24 RELAX (914) 963-1200 Fax: (914) 965-6267 E-mail: stress124@aol.com

Caregiver Network Inc. 561 Avenue Road, Suite 206 Toronto, ON M4V 2J8 Canada (416) 323-1090 Fax: (416) 966-2341 www.caregiver.on.ca E-mail: karenh@caregiver.on.ca

Organizations for Specific Diseases

Alzheimer’s Association (800) 272-3900 www.alz.org

American Cancer Society (800) 227-2345 www.cancer.org

Brain Injury Association (800) 444-6443 www.biausa.org Huntington’s Disease Society of America (800) 345-HDSA www.hdsa.mgh.harvard.edu

National Parkinson Foundation (800) 327-4545 www.parkinson.org

Stroke Connection (800) 242-8721 www.amhrt.org

Who Are the Caregivers?

  • Eight-five percent of all home care is provided by family members and friends, with 71 percent of all long-term care being provided by the community. Only 14 percent of home care is rendered by paid providers. One-third of primary caregivers assume the role because they live closer to the care recipient than other family members.

  • The average age of a caregiver is 57 years old, with 25 percent between 65 and 75 years of age, and another ten percent are 75 and older. Approximately 72 percent of caregivers are female. Research suggests that caregiving may be more prevalent in nonwhite families, ranging from 32 percent of Asian families to 29 percent for African Americans and 27 percent for Latinos compared to 24 percent for white families. n An estimated 14.4 million full- and part-time workers are balancing caregiving and job responsibilities. In California, more than half (53 percent) of family caregivers under the age of 65—those most likely to be in the labor force—juggle work and caregiving responsibilities. Within this, it is important to also note that between 20 percent and 40 percent of caregivers have children under age 18 to care for in addition to their disabled relative.

  • The average woman can expect to spend 17 years caring for a child and 18 years caring for an elderly parent.

    Please call your Office of Employee Assistance for further assistance or to obtain local referrals at 720-913-3200.
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